The long and winding road

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Well, it’s been a long time since I’ve blogged, lots going on though. Mum is half way through a 3 month stint of immunotherapy- so far no side effects but she looks frail and is a lot more dependent and verbally affectionate than before. She’d originally refused this treatment as there are few guarantees, and a likelihood she will get severely fatigued and nauseated. I think she only agreed as her doctor changed and suggested it, and as my sister and I were with her I think she said yes as she thiught that’s what we’d want. She continues to syphon off $50 notes to my daughter. My sister is still great – she flies in regularly to support both mum and me.

It’s 6 months since we were given 4-12months,  which is pretty disconcerting. We’ve got a few trips booked and each time we organise one I wonder if this will be the one we have to cancel. My fabulous husband asked me to organise a trip to Sydney to see Les Mis, something he knowsI really want to do, I wonder if we’ll get there? Last Friday we went for mum’s second dose of immunotherapy- she was too dehydrated to be cannulated, it took 3 oncology nurses over 45 minutes to succeed. Mum was so upset, it was awful to see her so vulnerable as her veins collapsed. She had thought she’d be ok to go to these appointments on her own but has now conceded that won’t be happening.Easter is approaching. I’m not religous but the significance doesn’t elude me, renewal and new life.

Every new day that mum is still with us is a gift.Each day that she is still with us and feels well is a bonus- I’m focussing on the present and appreciating each moment. My priorities are the clearest they’ve ever been, my love of family is as strong as it’s ever been and I’m gathering strength for the long road ahead.

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